Symptoms

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IMPORTANT: Symptom lists online have frequently been based on patient-reported symptoms. These are frequently NOT updated when we learn about people having an additional diagnosis (like syringomyelia) they didn't know at the time of reporting symptoms. So some symptoms that are considered "chiari" were actually caused by other conditions. Not everyone will have symptoms and some will only have a few. 
We will do our best to try and highlight those symptoms but this list should NOT be taken as a definitive list.  
  What Causes these symptoms? 
There is not always an established reason why these occur so these are potential causes doctors have considered contribute to symptoms. 
  - Compression of the cerebellum
  - Compression of the brainstem
  - Disruption to Cerebrospinal Fluid flow
  - Stretching of the brain. 
  - Elevated Cerebrospinal Fluid (Intracranial Hypertension or Hydrocephalus)
  - Compression of the cranial nerves 
  Red Flag Symptoms 
   These symptoms when seen are likely due to brainstem compression and considered a "flag" that surgery is required. 
  - Central Sleep Apnoea
  - Tachycardia 
  - Severe swallowing issues
  - Severe nausea
  Chiari Symptoms
  - Sub-Occipital Headache (brought on or worsened from straining)
  - Balance Issues
  - Problems with fine motor control
  - Nausea/Vomiting
  - Dizziness
  - Ataxia (difficulty walking)
  - Muscle Weakness or numbness in arms/hands (may also be due to syringomyelia)
  - Neck Pain
  - Tinnitus (ringing in ears)
  - Difficulty swallowing
  - Scoliosis
  - Insomnia/Sleeping Issues
  - Fatigue
  - Hoarse Voice
  - Facial Numbness
  - Visual disturbances (blurred, double vision, photophobia)
  - Nystagmus 
  - Cognitive Issues (may be more related to pain and sleep issue than directly from chiari)
  - Palpitations
  - Issues with gag reflex
  - Dysarthria (difficulty articulating speech)
  - Syncope/Black-outs 
  Symptoms that may be from related conditions. 
  - Leg weakness (maybe more related to Syringomyelia and/or Tethered Cord)
  - Emotional Issues (maybe more generically related to chronic illness vs chiari)
  - Loss sensitivity to hot/cold (likely Syringomyelia)
  - Bowel or Bladder Issues (likely Syringomyelia or Tethered Cord)
  - Muscle weakness and/or spasticity (Syringomyelia)
 
  References:
  - https://www.ninds.nih.gov/disorders/patient-caregiver-education/fact-sheets/chiari-malformation-fact-sheet
  - https://www.conquerchiari.org/documents/presentations/SYMPTOMS%20Presentation.pdf
  - https://www.mayfieldchiaricenter.com/
 
We are not a medical site, we do our best to give the most up to date information but the information provided should NOT be used in lieu of professional medical advice.